| |
 |
Home > For Parents
Information For Parents
Support Groups
This page is still being developed, so if you know
of a support group not listed here please send
us their information so that we can add it to this page.
Hint
If you're looking for information on a particular
condition
press Ctrl and F at the same time, type in a whole word or part
of a word then click search |
Non-specific Groups
Australian
Association for Families of Children with Disability
Information and advocacy for families of children with disabilities
to ensure the best possible support services are available to them
1800 222 660
mail@aafcd.org.au
Carers
NSW
Support programs, education, training and advocacy for people who
care for a person with a disability
02 9280 4744 or 1800 242 636
contact@carernsw.asn.au
Defence
Special Needs Support Group
A service set up for the families and individuals of the Australian
Defence Force who have special needs. Provides programs, support
groups and respite
1800 037 674 or 02 9395 9634
national.coordinator@dsnsg.org.au
Families
Supporting Families
Provide a means of communication between parents for the sharing
of information and their experiences in a mutually supportive environment,
thus improving knowledge for informed decision making and giving
emotional support that will enhance family well being
04 1743 1562
Newsletter
(pdf 360K)
Parent
Training Calendar
(pdf 199K) Please note: There is a mistake on the
term three Parent Training calender. The training scheduled for
Wednesday the 23rd of September is from 12 noon until 2pm, not in
the evening as noted on the training calendar.
Jigsaw
(pdf 110K)
An open forum and support network for parents and carers of children
with additional needs
Simone Jones 02 4953 8824
Janelle Rooker 02 4959 1671
Helen Gadd 02 49216267 (Special Education Family Worker)
Livewire
An online community for 10 – 18 year olds living with serious illness
or disability
Belinda Humphery 02 8425 5986 / bhumphery@starlight.org.au
Kylie Johnson 02 8425 5915 / kjohnson@starlight.org.au
Northcott
Society
Provides contact information for services, support groups and resources
to children and adults with a wide range of disabilities
02 9890 0100 or 1800 506 071
enquiry@northcott.com.au
Riding
for the Disabled Association of NSW
Provides horse riding instruction and other activities for people
with disabilities
02 8116 9726
stateoffice@rdansw.org.au
Samaritans
Supports families struggling with poverty, disability, illness or
other issues by providing practical assistance
1300 656 336
mail@samaritans.org.au
Strengthening
families for stronger kids
(pdf 258K)
Special Education Centre, University of Newcastle, 02 4921 6275
Newsletter
- Managing behaviours
(pdf 260K)
Technical
Aid to the Disabled
Dedicated and skilled volunteers and staff help to construct personalised
equipment for people with disabilities
02 9808 2022 or 1300 663 243
tad@tadnsw.org.au
A
Anxiety
Anxiety
Disorder support and information
An information and referral service to assist in recovery and reduce
the impact of anxiety disorders in people's lives
1300 794 992
jleitch@mentalhealth.asn.au
Asthma
National
Asthma Council Australia
Increases community awareness about asthma and provides information
on asthma management
1800 032 495
nac@nationalasthma.org.au
Autism
Aspect
(Autism Spectrum Australia)
Provides information services and education to people affected by
autism spectrum disorders, their families and the community
02 8977 8300
infoline@aspect.org.au
Autism Consultation &
Training Now (ACT Now)
Fact
sheets
Autism
Links
Autism Links is a comprehensive website for people with Autism,
their family and friends
Balance - Families
living with Autism
Family Worker:
Helen Gadd 02 4921 6267
Newcastle
Uni
(pdf 81K)
Parent Contacts:
Darani Cooper 02 4948 0008
Michelle Loughlin 02 4946 1421
Melissa Dumas 02 4953 0876
Port
Stephens
(pdf 139K)
Parent Contact:
Mel Georgiadis 02 4981 1149
East
Lake Macquarie ASD support group
(pdf 55K)
Organised by Strengthening Families for Stronger Kids
02 4921 8723
First Chance - Movie Club 2010 (pdf 23K)
Social group for teens with Aspergers Syndrome and High Functioning Autism
Mia Christiansen 02 4921 8723
strengthening-families@newcastle.edu.au
Sharing the Care (pdf 48K)
A support group for mothers of children with Autism
02 4957 5008 TempCare, or
02 4959 8695 Helen
Strive
(pdf 250K)
Families supporting families coping with autism
Maxine Baird 02 4991 3004 / 0419 913 033
Tracey Harrington 02 4998 1511 / 0409 710 147
Kylie Whiting 02 4990 2859 / 0403 190 052
West
Lake Macquarie ASD support group
(pdf 64K)
Organised by Strengthening Families for Stronger Kids
02 4921 8723
B
Blind
Royal
Institute for Deaf and Blind Children
Provides educational services to children who have significant hearing
and/or vision impairment, including children with additional disabilities
TTY 02 9871 1233 or 1800 043 411
online@ridbc.org.au
Vision
Australia
Offers a range of services, specialist knowledge and skills, tailored
to suit individual needs, to enrich the participation in life of
opople who are blind or have low vision, and their families
1300 847 466 or TTY 02 9334 3260
info@visionaustralia.org.au
C
Cancer
Camp Quality
Believes in bringing optimism and happiness to the lives of children & families affected by cancer through fun therapy
02 4947 8311 (Newcastle)
CanTeen
Aims to help young people aged between 12 and 24 years cope with
cancer
1800 226 833 or 02 9328 1563
nsw.admin@canteen.org.au
Redkite
Supports children and their families affected by cancer, by providing
emotional guidance, financial relief and educational services
02 9219 4000 or 1800 334 771
national@redkite.org.au
Cerebral Palsy
CP
Australia
Promotes the interests and wellbeing of people with cerebral palsy
1300 302 920
cphelpline@tscnsw.org.au
The
Spastic Centre
Provides a number of accessible features to assist parents, carers
and service profiders to support people with cerebral palsy
1300 302 920
scnsw@tscnsw.org.au
Cleft palate & lip
CleftPALS
Australia
The Cleft Palate and Lip Society – has been helping families whose
baby was born with a cleft for more than 30 years... Because the
Sharing Helps!!
CleftPALS
NSW
A volunteer based non-profit organisation of parents and professionals
involved in the treatment of the cleft condition. CleftPALS works
most actively to support parents who have young children that have
been born with a cleft. CleftPALS can assist with reliable and supportive
information if an Ultrasound Detection of a cleft condition has
occurred.
02 9294 8944
Coeliac
Coeliac Society of Australia
Provide information and support to those diagnosed with coeliac disease and their families, sufferers of dermatitis herpetiformis and those medically diagnosed as requiring a gluten free diet.
Congenital Melanocytic Naevus (CMN)
Nevus
Support Australia
08 8298 3080
nevus@tpg.com.au
Cystic Fibrosis
Cystic
Fibrosis NSW
Provides advocacy, support and information for people living with
cystic fibrosis
1800 232 823
general@cysticfibrosisnsw.org.au
D
Deaf
Aussie
Deaf Kids
Provides online support and resources for parents of hearing impaired
and deaf children living in Australia
info@aussiedeafkids.com
Deaf
Children Australia
Provides information and support for families of deaf and hearing
impaired children and young adults
1800 645 916 or TTY 1800 508 523
helpline@deafchildren.org.au
Deaf
Society of NSW
Provides a wide range of support services and programs for deaf
people
02 9893 8555 or TTY 1800 893 885
info@deafsociety.com
Royal
Institute for Deaf and Blind Children
Provides educational services to children who have significant hearing
and/or vision impairment, including children with additional disabilities
TTY 02 9871 1233 or 1800 043 411
online@ridbc.org.au
Depression
beyondblue
- The National Depression Initiative
Addresses issues related to depression, provides information on
treatment options and conducts research
1300 224 636
bb@beyondblue.org.au
Diabetes
Diabetes
Australia NSW
Provides personalised and practical assistance to benefit people
with diabetes
02 9552 9900
info@diabetesnsw.com.au
Down Syndrome
Down
Syndrome NSW
Represents the interest and responds to the needs of people with
Down Syndrome
02 9683 4333
admin@dsansw.org.au
Newcastle
Down Syndrome Support Group
(pdf 110K)
Support network for parents and friends of persons with DS
Meaghan Hepplewhite 02 4955 1638 / 0413 515 274
Anna Brown 02 4953 6619 / 0414 90 90 40 / amb@sparke.com.au
Dyspraxia
Australian
Dyspraxia Association Inc
Provides information, resources, support, education and training
services to people affected by Dyspraxia, their families and the
community
02 4577 6220
information@dyspraxia.com.au
E
Epilepsy
Epilepsy
Action Australia
Provides services to all people with a personal or professional
involvement with epilepsy
1300 374 537
epilepsy@epilepsy.org.au
G
Gastrostromy
Gastrostomy Information & Support Society
Support group for people with gastrostomies & their carers
Gifted and talented children
NSW Association
for Gifted and Talented Children
Helps parents and carers locate relevant information about giftedness
in children. Provides free online resources for gifted children,
parents and teachers
02 9633 5399
office@nswagtc.org.au
H
Hemiplegia
Hemiparents
An online support group for parents of children with hemiplegia.
The site offers information on the various forms of therapy and
services available
02 9899 2474
contact@hemiparents.org
I
Intellectual Disability
NSW
Council for Intellectual Disability
Offers information, referral services and advocacy for people affected
by intellectual disability
02 9211 1611 or 1800 424 065
mail@nswcid.org.au
L
Learning Difficulties
Learning
Difficulties Coalition NSW
Provides advocacy and support for students with learning disabilities
and associated disorders and their parents
02 9806 9960
info@ldc.org.au
Specific
Learning Difficulties Association of NSW (SpeLD)
Provides support, information and advocacy for people with specific
learning difficulties and those who teach and care for them
02 945 9477
enquiries@speldnsw.org.au
Limb differences
Limbkids
Support Association Inc
A voluntary group of parents, professionals and other people concerned
with the care of children who have congenital or acquired limb differences
07 5533 9754
president@limbkids.asn.au
M
Mental Illness
SANE Australia
Offers programs and conducts campaigns to improve the lives of people
living with mental illness, their family and friends
1800 187 263
helpline@sane.org
Mood disorders
Black
Dog Institute
An educational, research, clinical and community-oriented facility
offering specialist expertise in mood disorders. The institute facilitates
community education programs, and runs depression and perinatal
clinics
02 9382 4530
blackdog@unsw.edu.au
Multiple sclerosis
Multiple
Sclerosis Australia
Offers specialist services and support to people with multiple sclerosis
1800 287 367
infoline@mssociety.com.au
P
Physical disabilities
Give me a break (pdf 57K)
Support Group for Carers of
Children with Physical Disabilities
02 4957 5008 Temp Care
R
Reflux
Reflux
Infants Support Association Inc
Aims to support families of infants and children who suffer from
gastro-oesophageal reflux
07 3229 1090
info@reflux.org.au
S
Sexual Assault Victims
Help
for victims of sexual assault
Siblings
Siblings
Australia
A national organisation focussed on the wellbeing of the siblings
of children with disabilities and chronic illness. Website includes
resources, information on workshops and a directory of services
08 8361 8361
info@siblingsaustralia.org.au
Support4Sibs Network
Supporting young people who have a sibling with a disability
Ages: 12-18 years
Venue: Maitland PCYC, James Street, Maitland 02 4934 7122
Phone: Paul Godfrey at Life Activities 02 4914 5999
Stroke
Different
Strokes
(pdf 168K)
A club for stroke survivors from 13 yrs to mid 30's that provides
mentoring, support and information.
Meet 2nd Saturday of every month at Lillies on the Park Cafe, Bicentennial
Park, Homebush between 11am and 1pm approximately.
cullenandco@yahoo.com.au
T
Thalassaemia
Thalassaemia
Society of NSW Inc
Provides support for patients with thalassaemia and other blood
disorders, by providing funding for medical treatment, equipment,
research and education
02 9556 4844
Tourette Syndrome
Tourette
Syndrome Association of Australia
Disseminates materials on health care, education and welfare services.
Also operates support groups and a telephone counselling service
02 9382 3726
info@tourette.org.au
V
Velo-Cardio-Facial Syndrome
VCFS
Foundation of Queensland
Exists to help and support people with VCFS, and their families
in every way. They aim to educate people, to raise awareness about
VCFS, and to lobby and advocate government, medical and educational
institutions to promote the interests of VCFS sufferers and their
families
Velo-Cardio-Facial
Syndrome Educational Foundation Inc
An international not-for-profit organization dedicated to providing
support and information to individuals who are affected by Velo-Cardio-Facial
syndrome, their families, physicians and other practitioners
Visual impairment
Vision
Australia
Offers a range of services, specialist knowledge and skills, tailored
to suit individual needs, to enrich the participation in life of
opople who are blind or have low vision, and their families
1300 847 466 or TTY 02 9334 3260
info@visionaustralia.org.au
|
|
